On Saturday, May 3rd, Transcend Fitness in Newtown will host Drew’s Hope Overcoming Obstacles Family Fun Obstacle Run. Families can participate in a two-mile obstacle course fun run. The festivities begin at 10:00am, rain or shine. All ages and abilities are welcome. Proceeds from the event support Drew’s Hope Research Foundation, which raises funds for Batten Disease research.
Batten Disease is a childhood disease that prohibits the production of an enzyme needed to clear toxins from the brain. Without the enzyme, permanent brain damage occurs affecting the child’s ability to talk, walk, see and eat. The life expectancy is eight to 12 years.
Drew’s Hope Research Foundation was established in 2007 after the Ferrandino’s received the devastating news that their five-year-old son, Drew, had Batten Disease. Drew, who turned 12 in February, has gone from a child who once ran, jumped, and played to a child needing constant care. Every day is a struggle, but Drew continues to smile regardless.